The persistent needs of people living with aphasia: Results of a national survey

Ganzfried, Ellayne and Hinckley, Jacqueline (2012) The persistent needs of people living with aphasia: Results of a national survey. [Clinical Aphasiology Paper]

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Abstract

Our current knowledge about the information needs of people with aphasia comes primarily from small-scale qualitative studies. We distributed an electronic survey to consumers living with aphasia and professionals. There were 428 responses from across the United States. Both consumers and professionals rated information as “somewhat difficult to find”. The highest rated five topics were: how to keep improving; communication strategies; aphasia therapy techniques; coping strategies; and strategies for caregivers. There was an interest in receiving information through digital media such as webinars. The results have implications for national and regional efforts to provide information about living with aphasia.

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